Financial Help for People With ALS
Amyotrophic Lateral Sclerosis, known as Lou Gehrig's Disease, affects the nerve cells in the spinal cord and the brain, which control the function of voluntary muscles. In ALS patients, the muscles become paralyzed over time because they can no longer function. Financial help for people with ALS can offset the expenses of medical equipment, medication and daily monitoring, which can deplete a patient's financial resources.
Government Assistance
Government assistance, such as Medicare, Medicaid, SSI and similar state or federal government programs, assist those with ALS if a doctor determines that the patient is not capable of returning to work. Government medical programs, such as Medicare Part A, covers disabled ALS patients if they need hospice services, help with rental equipment costs, medications for pain and symptoms and home health visits. Government assistance can be a permanent means of financial support for patients with ALS. These programs can be applied for through Social Security or through your local Department of Health and Human Services. In order to apply, you will need to get a copy of the application from your state office as the application requirements vary by state. It is important to submit financial documentation, such as proof of income and expenses.
Charitable Foundations
Charitable Foundations, such as The A.L.S. Family Charitable Foundation and ALS a Gift of Life, provide financial assistance for patients with ALS, as well as their families or children. The Foundation Center website also offers a searchable grant database that lists private foundations offering grants to individuals. The A.L.S. Family Charitable Foundation and ALS a Gift of Life do not have rigorous application processes and normally want information about your financial situation and may require that you fill out an application for their review. Cure ALS Ride for Life is another organization that provides financial assistance for in-home care and legal services.
Manufacturers
If your insurance does not cover your medication or equipment costs, you can contact the manufacturer directly for assistance. Medications and equipment may be provided at a low cost or free of charge to those with financial need. Applicants normally need to submit a letter from a physician explaining their health situation, along with financial documentation for the individual or family. One such programs is the National Organization for Rare Disorders medication program, which helps patients with ALS obtain Rilutek, the only FDA approved treatment for ALS as of 2009.
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